Where to get Support
The DBA Foundation encourages families and individuals with DBA syndrome to connect with us and learn more about how we can assist you. We welcome your calls and/or emails. Whether you are newly diagnosed or have been dealing with DBA for a long time, please contact us. We’d love to hear from you!
Founded in 1984, Camp Sunshine provides retreats combining respite, recreation, and support, while enabling hope and promoting joy, for children with life-threatening illnesses and their families through the various stages of a child’s illness.
Diamond Blackfan Anemia Registry (DBAR) of North America was established in 1991 to collect accurate clinical and demographic data on DBA patients and their families. Headquartered at the Feinstein Institute for Medical Research (part of the Northwell Health System and Cohen Children’s Medical Center of New York), the DBAR is a research organization dedicated to acquiring, analyzing and disseminating information on Diamond Blackfan anemia to affected individuals, their families and medical professionals.
We are a leading cancer-fighting organization with a vision to end cancer as we know it, for everyone. We are improving the lives of people with cancer and their families as the only organization combating cancer through advocacy, research, and patient support, to ensure that everyone has an opportunity to prevent, detect, treat, and survive cancer.
Information on clinical latest clinical trails.
Scholarship Application
Friends of DBA offer a Scholarship to DBA Patients, family members of DBA, and those individuals seeking education in medical fields.
(application are not open at this time)
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